• You are currently viewing our forum as a guest which gives you limited access.

    By joining you will gain full access to thousands of Videos, Pictures & Much More.

    Membership is absolutely FREE and registration is FAST & SIMPLE so please, Register Today and join one of the friendliest communities on the net!



    You must be at least 18 years old to legally access this forum.
  • Hello Guest,

    Thanks for remaining an active member on GayHeaven. We hope you've enjoyed the forum so far.

    Our records indicate that you have not posted on our forums in several weeks. Why not dismiss this notice & make your next post today by doing one of the following:
    • General Discussion Area - Engage in a conversation with other members.
    • Gay Picture Collections - Share any pictures you may have collected from blogs and other sites. Don't know how to post? Click HERE to visit our easy 3-steps tutorial for picture posting.
    • Show Yourself Off - Brave enough to post your own pictures or videos? Let us see, enjoy & comment on that for you.
    • Gay Clips - Start sharing hot video clips you may have. Don't know how to get started? Click HERE to view our detailed tutorial for video posting.
    As you can see there are a bunch of options mentioned in here and much more available for you to start participating today! Before making your first post, please don't forget to read the Forum Rules.

    Active and contributing members will earn special ranks. Click HERE to view the full list of ranks & privileges given to active members & how you can easily obtain them.

    Please do not flood the forum with "Thank you" posts. Instead, please use the "thanks button"

    We Hope you enjoy the forum & thanks for your efforts!
    The GayHeaven Team.
  • Dear GayHeaven users,

    We are happy to announce that we have successfully upgraded our forum to a new more reliable and overall better platform called XenForo.
    Any feedback is welcome and we hope you get to enjoy this new platform for years and years to come and, as always, happy posting!

    GH Team

How is life different with HIV?

grrrpuppy

Member
Joined
Feb 26, 2010
Messages
121
Reaction score
24
Points
0
Does anyone want to share their experiences from that first time they were diagnosed with HIV and how your journey has been going dealing with it?

I am 31 years old.
I was diagnosed recently and am in shock. (My bf got it during a month's separation we had from a good friend of his, and I got it from my boyfriend)

I feel like I didn't deserve getting it. I just want to scream, but I have to accept it as my life now. It is so frustrating to me to have to deal with it. The stigma is a hard thing. I'm embarrassed of it and I think others will see me as disgusting. It hasn't really hit me completely yet, I've been pushing the emotions to the back of my mind.

Doing the research and talking with my doctor... I am VERY optimistic. The medication these days can bring the viral load to undetectable, so the spread of it is very hard at that point. I don't plan on 'spreading' it, but my paranoia scares me even when I get a cut on my finger and my friends are around me.

What will the meds' side effects do to me??? Sickness all the time???

My friends are slowly finding out and it scares me to death.
I don't want to be looked at as this gross whore fag... it's a scary thought.

I have both straight and gay friends and I live in a country town in America.

So tell me your story... doesn't have to be you, maybe a friend of yours who's going through this too.

Love you guys.
 
X

XMan101

Guest
Thanks for sharing this grrrpuppy, I'm sure it will help many :)

I've never personally known anyone in the same position but have met HIV+ people. One guy I met and chatted to one night was still quite young, this was some years ago. He seemed very well adjusted to his situation and was a lovely guy.

Nobody should get shunned for it these days and, as you say , with the right medication combination can be kept well under control. I hope all goes well for you grrrpuppy :)
 

JonnyFantastico

Super Vip
Joined
Oct 3, 2008
Messages
2,539
Reaction score
229
Points
63
I've known quite a few people with HIV; some of them in my family that I've long since lost. However, they never let it get in the way of their living and proved that it is not a "death sentence"... because they were too busy living life while they were still here.

A lot of them are gone now and there is one other person in my family; my uncle, currently fighting it... but he is always the same funny and out-there person he always was and will continue to be.

Stay strong, Grrrpuppy. You do have a fight in front of you, but with the support of people who love you and most of all, yourself; you will be just fine. Loads of love and strength to you and your boyfriend. :)
 

Jamie

The Restless Soul
Joined
Apr 15, 2009
Messages
2,209
Reaction score
94
Points
0
Cheer up grrrpuppy! It`s not the end of the world! And it`s not like you can catch AIDS or can be HIV+ only from gay sex! There are so many people in this world who got sick from straight sex, from infested needles...or they were just born like this.So your friends can`t judge you for this.
People just didn`t yet realized that when you have a sickness you need to change your life style a bit. It`s like with cancer. People see only straight: I have cancer, I`m gonna die! No! There are so many who survived and won the fight with the disease. But you have to change. If you`re a nervous type, calm down! If you have a stressfull job, change it to something more calm! Eat only natural. No more fried things or fast foods or whatever. and what`s more important: THE PSYCHIC! Stop thinking about it. That`s what makes the disease advance more fast! Forget about the disease. You don`t have it. It`s not there. Yeah, remember it when you cut yourself and you`re near someone or when you`re having sex. But in rest, forget it. Create yourself moments of happiness who feed your heart and soul. And if you can do these things I assure you that if this forum will still be here when you`ll be like 80 yo...you will still be here replying to some threads!:)
I wish you all the best!
 

grrrpuppy

Member
Joined
Feb 26, 2010
Messages
121
Reaction score
24
Points
0
Wow, you guys are all really really good guys. Thanks for the really nice words, it helps more than you can realize!!!
 

taurus2904

Obstinatician
Joined
Feb 13, 2009
Messages
2,972
Reaction score
179
Points
0
Ok, other than one close friend, my doctor, and the odd date over the past semi-decade, I don't really talk about this. I've been positive for ten years - next month; I've been on meds for about four months. Once-a-day, and about the size of a hefty anti-biotic tablet...not so bad. Sometimes, weird dreams - but more often, Technicolor extravaganzas. Sexy dreams are almost like a Holodeck. (Please note: This is far from an endorsement!) There is some tiredness, and the occasional queasy moment. Oh yeah, they're expensive.

Like Grrrpuppy, the stigma is hard to overcome. Most days, I don't even think about it. Other times, it can bum me out. If you have access to counseling, Grrrpuppy, make use of it. Much insurance now classifies HIV as a 'chronic condition' and you can get some access to psychological, dietary and/or other support. (It may be limited, but you can use them like periodic booster shots for the psyche.)

I don't see the need, right now, to discuss this with my family. I always talk about it with any guy I go out with -- from what I remember of dates! ;) It's basically just something else I deal with.
 
Last edited:

JonnyFantastico

Super Vip
Joined
Oct 3, 2008
Messages
2,539
Reaction score
229
Points
63
I honestly didn't think I would see this thread grow so much. My biggest hugs, love and respect to the two of you; Grrrpuppy and Taurus for sharing something so deeply personal. :) Stay strong, my friends.
 

grrrpuppy

Member
Joined
Feb 26, 2010
Messages
121
Reaction score
24
Points
0
I didn't think I'd get much response either, but I thought that there have to be others who need to read about this and to be supportive to those of us who need it. Thanks taurus, nilstreet and everyone who reads this and even more thanks to those who post a reply.

I read that there was a major study done in Europe that found a certain drug nearly wipes it out to a zero viral load... there are so many great things happening with HIV and Aids research these days that it's only a matter of time before, at least, a vaccine arrives.

The sad thing is that I realize pharmaceutical companies make more money from the TREATMENT than the CURE... this is true with everything... but I stay optimistic!!!
 

bloop2

V.I.P Member
Joined
Feb 25, 2009
Messages
1,171
Reaction score
39
Points
0
Wow.. you can talk to me all you want grruupy im all ears.. But you are right about looking at things on a positive perspective!! It doesn't mean anything! The glass is always half full right hun? <3 Im here for you! *hugs*
 

alexfot55

Junior Member
Joined
Nov 11, 2009
Messages
390
Reaction score
10
Points
18
Wish you deep old age.It will probably happen if you will persuade yourself to fight your anxiety with the help of good people,near and far.
 

pwycymru

New member
Joined
Aug 4, 2010
Messages
11
Reaction score
4
Points
0
I really understand your feeling because my brother has HIV positive too.

The first day my parents knew that story, They cried and screamed as panic/psychotic patients in the hospital. I was only one in the family who did not cry bcz I knew that I must help everyone in my family to feel better from such bad situation.

Because my family member have HIV positive, I really understand what HIV positive people feel and need.

However, honestly, because I'm not good in English, I cannot encourage you by my writing. But, I can give you all information about how to take care yourself, medicine, and other medical issues which you need. I'm one of health professional who often provide treatment to HIV patients. And as I tell you, my brother has HIV positive, so I try to help HIV patients as much as I can.

Do you know, some medical professionals in my town deny to provide treatment to my brother because of his HIV. It is terribly bad and I do really hate their unethical behaviours. That's why I devote my professional life to help HIV patients as much as I can, and why I was a lecturer of the medical ethics course. (this time I do not provide treatment and teach because I'm studying in the higher educational level)

Therefore, please do not hersitate to contact me directly anytime that you want (please see your personal contact page. I will send my email to you on that page). I'll reply you as soon as possible. And if I cannot provide any information, I'll ask my colleagues to find out that information for you. (I and my colleagues are university staff---research and books are our main life)
But, please always keep contact with your doctor as to maintain your good physical and mental health.

I believe that you can pass this bad situation. As long as we still alive, ther should be good hope everywhere.

Cheer!!!
 
Last edited:

Electric_XII

New member
Joined
Nov 23, 2010
Messages
86
Reaction score
5
Points
0
Hi grrrpuppy.

The previous posters have covered nearly everything so I don't have much to add except I've found that taking Truvada (which may cause dizziness), Reyataz, and Norvir Sec (both of which must be taken with food) with a light snack at bed time allows me to sleep through the whoozy feeling these meds can often produce.

If you take a proactive approach to bolstering your health (no cigarettes, booze, dope or junk food, and get regular exercise & proper sleep) then you'll outlast many of the people you may know who don't take good care of themselves.
 

Whisper

Crazy Bitch
Joined
Jul 23, 2010
Messages
2,699
Reaction score
18
Points
0
Just take care of yourself, I know it takes time to accept all (I don't have HIV, but I have parkinsonism and I'm treated as Parkinson's Disease patient and I'm only 33 years old). When something life-changing happens I think it is good if you have someone (even me :) )to talk with, go through your feelings and thoughts.

Adjusting takes time, I know, but don't forget to enjoy the good times. *hugs* You're not alone :heart:
 

grrrpuppy

Member
Joined
Feb 26, 2010
Messages
121
Reaction score
24
Points
0
Started the meds a few days ago... Atripla... 3 pills in one... The news is that I should be undetectable in a few weeks. I can't believe how far science has come! The side effects are so easy to deal with, vivid dreams, a little bit of tiredness... nothing worse than the anti depressants I used to take.

I'm doing so well. Very healthy (even though I love to have a great time on the weekends with my friends still)... The doc is really excited about my bf and I getting to some great health and undetectable levels. The new medication available is a God-send... and really incredible. I am so hopeful!

The weird thing is that I have come to find out that so many people in my town are positive too. It is such a common thing now for gay people. So many of my friends are positive and have been keeping it a secret. They aren't having unprotected sex, or exposing people, ...and neither am I or my bf... but for some reason, it seems like most of my gay friends are positive. I guess with treatment, living a normal life is easy and expected.

Anyways...
Just wanted to share this with you all... maybe it will help someone out there who reads it and is struggling with the stigma of HIV too.

Love you guys! and love this site!
 

Electric_XII

New member
Joined
Nov 23, 2010
Messages
86
Reaction score
5
Points
0
It's good that you're doing well grrrpuppy. :)

But on the other hand it's disappointing to realize that so many of today’s gays (and str8s) are HIV positive. :(

'Bareback'...

--------

I stopped taking my pills last month. After taking them for a year and a half I want to find out if my immune system has adapted to dealing with HIV on its own.
 

grrrpuppy

Member
Joined
Feb 26, 2010
Messages
121
Reaction score
24
Points
0
It's good that you're doing well grrrpuppy. :)

But on the other hand it's disappointing to realize that so many of today’s gays (and str8s) are HIV positive. :(

'Bareback'...

--------

I stopped taking my pills last month. After taking them for a year and a half I want to find out if my immune system has adapted to dealing with HIV on its own.

I know, it's really crazy how so many are positive. Even my female and straight friends never use condoms... it's nuts. Pregnancies and STD's... just because we make these stupid mistakes. I'm a big promoter of safe sex and I'm trying to get through to people, without actually saying anything about my status. I read that black females are the biggest population contracted the virus right now... it's so crazy. I'm hopeful that a cure will happen within my lifetime, but in the meantime, we need to prevent this... and we really need to fight the stigma around HIV people.

What medication were you on? I've always wondered what it would be like to stop a certain medication in the future.

Good luck my friend! I wish you all the best.
 
L

loveless92

Guest
Don't worry grrrpuppy I don't see you as a gross whore or anything, I just see you as a man who was dealt a poor hand, I WISH YOU THE BEST OF LUCK!!!!
 

Electric_XII

New member
Joined
Nov 23, 2010
Messages
86
Reaction score
5
Points
0
I know, it's really crazy how so many are positive. Even my female and straight friends never use condoms... it's nuts. Pregnancies and STD's... just because we make these stupid mistakes. I'm a big promoter of safe sex and I'm trying to get through to people, without actually saying anything about my status. I read that black females are the biggest population contracted the virus right now... it's so crazy. I'm hopeful that a cure will happen within my lifetime, but in the meantime, we need to prevent this... and we really need to fight the stigma around HIV people.

What medication were you on? I've always wondered what it would be like to stop a certain medication in the future.

Good luck my friend! I wish you all the best.

It's good that you are trying to encourage others to practice safe sex. In recent times too many young gays have went for this 'bareback' BS hook, line & sinker.

From what I gather the bareback idiocy was started by socially unsuccessful 'bug chasers' (who are HIV negative) who seek out 'gift givers' (who are HIV positive) with the aim of becoming infected in order to fulfil a death wish or to achieve a greater degree of acceptance in a gay social structure where youth & beauty are prized to the near-complete marginalization of all else.

Needless to say 'bug chasers' are very lonely and often chronically depressed individuals who have trouble forging meaningful relationships due to variety of reasons well understood by any gay whose upbringing was scarred by the usual schedule of rejection & abuse dumped upon queers by a predominantly homophobic society. It takes an exceptionally strong willed individual to weather said abuse without winding up emotionally scarred and neurotic to a determinable degree.

In the pre-Highly Aggressive Anti Retro-viral Therapy era (prior to 1996) large numbers of previously healthy & beautiful young men would rapidly deteriorate en mass to the immense shock and sorrow of their friends. The sight of so many beloved 18-year-olds looking like there were suddenly going on 80 was enough to make safe sex decidedly sexy virtually overnight. No one in a gay world which prizes superficial male beauty above all else wants to experience the wide spread rejection of being 'old & ugly'.

Then later on after the first few waves of AIDS victims had died and the disease lost much of its horrifying visibility, evermore effective H.A.A.R.T. engendered the perception of HIV/AIDS as being a manageable condition (*for those who have access to it).

The combination of the 'bareback' craze started by 'bug chasers' + the advent of effective H.A.A.R.T. + the loss of AIDS' visibility + the rebelliousness of youth + a gay culture dominated by male vanity which worships youth & beauty + the $ that is to be made by marketing something 'new' to those who are young and inexperienced = today's bareback scene.

I named the three types of HIV medication I was taking a few posts earlier.

--------

*If any young guys who read this thread won't learn & practice safe sex for the benefit of their own health and that of their partners', then do so for this reason:

HIV Medications
How Much Do They Cost?


Even if one lives in a jurisdiction where the cost of HIV meds is covered by the State, that situation can be changed by a single election.

In contrast to the above expense, condoms are cheap or can be obtained free of charge at most LGBT outreach centers etc.

When I last set foot in a gay bar back in '94 there were bowls of condoms available to the customers. I wonder if they are still there...
 

gearpigdc

New member
Joined
Aug 5, 2010
Messages
15
Reaction score
0
Points
0
hey - glad you asked for info/support. from what you've posted, it sounds like you're gonna be more than OK.

WHY I'M RESPONDING

I was diagnosed with HIV in 1991, when I was 28 years old. It was 50/50 whether I'd live to 30 - but now I'm 48 (which is old in gay years, but most days is better than the alternative) and have no real health problems related to HIV.

I'm an RN, and I have volunteered or worked in HIV/AIDS much of my adult life (my last job was educating/supporting people just diagnosed). So I might know a thing or two - and I'm careful to not present anything as a fact if it's really an opinion. (I hope my screename, which is a relic from a specialized adult networking site, didn't make you discount my response.)

HOW IS LIFE DIFFERENT?

in most ways, it's not.
-I take medicine once a day, 4 pills for HIV (and a some for being older and having mild high blood pressure, etc).
-I feel guilty when I don't take my medicine. very guilty, cuz I'm an RN and know better. luckily, missing a dose a month or so hasn't led to resistance/mutations/changing meds.
-I have to have "the talk" with hookups and/or dates - I've come to get it out of the way early, b/c even now some folks won't date someone with HIV (unless they lie or don't know they have it, of course) and I don't really wanna learn that on the 5th date.
-I consider each year a gift (not all Polly-anna like, tho, and I still waste time and make stupid choices in men, etc); since 1997 (when effective meds came into broad use) I don't worry I'll die early, but I also plan in 5 year increments.
-I try to keep everything in perspective. Sure, I have HIV, but I also ride a motorcycle. Which is far more likely to get me killed (but it's fun).

you asked about side effects, transmission/prevention, and stigma - so I'm gonna address each of these (sorry, this has turned into a very long response, but I am too lazy to edit any further and I don't want to not share something important, since we probably won't chat all the time about this).

MED SIDE EFFECTS
-in the medium and long run, many people have few/no side effects. I and most people I know who have been on HIV meds for over a few months don't have any noticeable side effects. You'll hear about fatigue, nausea, "g.i. issues," vivid dreams w/ one medication, etc - but don't presume you'll be in the group that experiences these things, and remember that these types of issues can have multiple causes.
-in the short run, most side effects can be managed/minimized (e.g., taking the med with a type of food that reduces poopyness).
-most med side effects lessen or disappear within a coupla months on the med.
-a great HIV medical source, which you probably know already: Thebody.com

TRANSMISSION/PREVENTION
-there are no confirmed or even very likely cases of anyone getting HIV through "casual transmission" - which includes kids biting other kids, people bleeding on others, first aid when barriers like gloves weren't available, kissing, sharing all sorts of things (like toothbrushes - ick).
-you probably learned about that in health class in high school, but even if you "know" that it's not a real risk, your concern is 1) very normal when someone's newly diagnosed, and 2) shows that you care about others.
-in 20 years of having HIV, I KNOW (cuz I've checked when there was a question, e.g. when an ex got HIV 6 months after the breakup but we only had safer sex and he barebacked with a few poz guys during and after our time dating) I've never given anyone HIV. Which is really important to me. -In this time, I've been sexually active but usually not super-slutty or super-popular, had a brief period of drug use (not the best thing to do if you have HIV. or if you don't), have played sports that involve occasional injuries, and am clumsy (2 bandaids on fingers right now, oops).
-for things like cut fingers, consider whether your blood or cum are going INTO another person, and how much. it's EXTREMELY unlikely that you'll infect anyone unless you have sex or share injection supplies. if you bled all over someone who didn't have open sores, that's gross but won't give them HIV. and if they did have open sores, given they'd be oozing out, your blood wouldn't really be going INTO them - so really, this isn't a probelm (but still try not to bleed on your friends. or strangers.)
-the undetectable viral load* - transmission connection makes good sense, though it's not been "proven." Studies strongly suggest it does reduce risk significantly - but not to zero.
-using condoms, at least w/ anal sex (or vaginal, but you have a bf and download gay porn so I think that may not apply to you), reduces risk to zero or damn near zero.
-even if you and the bf have the same strain, reinfection isn't helpful so condoms with him would be a good thing. as well as with anyone else.

STIGMA
-Having HIV doesn't mean you're gross, or a whore, or a party boy, or anything. In fact, one can be all those things and not have HIV or any other STDs, if you use reasonable precautions.
-Try not to judge YOURSELF harshly. Cuz if you do, you invite that from others. And it doesn't help you stay healthy or happy. You made a mistake, as all people do, and you caught a serious but manageable disease.
-I realize your local norms are different than my experience in DC, but in the 1980s and early 1990s, a fair number of brave people with HIV/AIDS have stood strong in small towns, faced prejudice etc. head-on, and made things a bit easier. People may still have an immediate icky reaction, but when they either remember what they know or get educated (by you, possibly) the vast majority will respond rationally and without fear/judgment.
-A good source to learn about the societal issues around HIV: poz.com and/or the print version of the magazine.

A COUPLA THOUGHTS ON SHARING THE NEWS
-You mentioned your friends "are finding out" - do you mean someone other than you is telling them? I'd strongly suggest whoever that is shut the fuck up and let you do this right.
-Tell people who can handle the news and can offer you some support - you may have to educate them; sometimes it's best to wait on telling high-maintenence friends or family until you're a little more "settled," so you don't end up supporting them instead.
-When in doubt, don't tell someone just yet. You can't untell them, and unless you're gonna have unprotected sex or share injection supplies, or they are part of your healthcare team, it's really not their business.

ONE LAST POINT AND I'LL STOP, PROMISE
-Though you may well handle this with friends, family, the bf, etc, if you don't have a counselor/therapist it might be wise to consider at least short-term - maybe a counselor, a support group, or something else.
-This is not because you are crazy. Living with HIV (or Diabetes, or heart disease, etc) is an adjustment. Give yourself time and space to handle it, and get supports as needed.

Hope this was helpful to you. Keep reaching out; people are often better than we expect (given I said "often," that could count as a fact but I don't have stats on it.) :)

Kevin
 
Top